How can we improve end of life care for people with ID?

Forrester-Jones, Rachel and Oliver, David J. (2010) How can we improve end of life care for people with ID? In: Journal of Applied Research in Intellectual Disabilities. Wiley-Blackwell p. 415. (doi:https://doi.org/10.1111/j.1468-3148.2010.00580.x) (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

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Official URL
http://dx.doi.org/10.1111/j.1468-3148.2010.00580.x

Abstract

Aim: Two former studies undertaken in Kent exploring the attitudes and involvement of palliative care services with ID care teams showed limited awareness of each other’s service. Specialist palliative care services were involved in the care of few people with ID and ID teams had limited contact with palliative care. Moreover both had limited understanding of each other’s roles and there was evidence of negative attitudes including ‘patronising sympathy’. Conclusions recommended the development of increased collaboration between services. This study aimed to explore the ’next step’ of how to link both types of service together so as to improve the experience of end-of-life care for people with ID. Method: Case studies of the establishment of ‘link team’ members were analyzed to explore positive and negative experiences of collaboration. Results: ‘Link team’ members proved helpful for collaboration between specialists in palliative care and ID carers, allowing care to be provided within individuals’ homes. Conclusion: Extra support and expertise available can be developed as a result of this collaborative approach, improving end of life care for people with ID.

Item Type: Conference or workshop item (Paper)
Subjects: H Social Sciences > HV Social pathology. Social and public welfare
Divisions: Faculties > Social Sciences > School of Social Policy Sociology and Social Research > Tizard
Depositing User: Rachel Forrester-Jones
Date Deposited: 10 Apr 2013 14:27 UTC
Last Modified: 07 Dec 2015 15:33 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/33565 (The current URI for this page, for reference purposes)
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