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My training did not prepare me for this! Specialist palliative carers knowledge of intellectual disability. 13th World Congress IASSID

Forrester-Jones, Rachel, Oliver, David J., Duplock, L. (2008) My training did not prepare me for this! Specialist palliative carers knowledge of intellectual disability. 13th World Congress IASSID. In: Journal of Intellectual Disability Research. 52 (8-9). p. 652. Wiley (doi:10.1111/j.1365-2788.2008.01087.x) (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided. (Contact us about this Publication)
Official URL
http://dx.doi.org/10.1111/j.1365-2788.2008.01087.x

Abstract

Aim: This study investigated the knowledge base of palliative health care professionals working with people with intellectual disabilities who were dying. Method: Focus groups were held with 38 doctors and nurses in 7 specialist palliative care providers in Kent, UK. Areas of discussion included levels of professional experience in the care of people with ID, areas of concern and barriers to care provision. Results: Data showed that involvement of specialist palliative care services for people with intellectual disability is small. Specialists expressed the view that their training and knowledge of this patient group is also low and that this resulted in anxieties as to how to adequately care for this patient group. Conclusions: Specialist palliative care providers have little contact with patients with ID and know little about their specific ID needs. Whilst there may be no obvious discrim- ination against these patients there is a need for greater awareness of ID amongst staff, at all levels, so that the needs of people with ID can be addressed adequately, and appropriately.

Item Type: Conference or workshop item (Paper)
DOI/Identification number: 10.1111/j.1365-2788.2008.01087.x
Subjects: H Social Sciences > HV Social pathology. Social and public welfare
Divisions: Faculties > Social Sciences > School of Social Policy Sociology and Social Research > Tizard
Depositing User: Rachel Forrester-Jones
Date Deposited: 03 Apr 2013 11:40 UTC
Last Modified: 26 Jun 2019 13:37 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/33503 (The current URI for this page, for reference purposes)
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