Going public and watching sick people - the clinic setting as a factor in the experiences of gay men participating in aids clinical-trials

Ryan, L. (1995) Going public and watching sick people - the clinic setting as a factor in the experiences of gay men participating in aids clinical-trials. Aids Care-Psychological and Socio-Medical Aspects of Aids/Hiv, 7 (2). pp. 147-158. ISSN 0954-0121. (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

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This paper reports findings from a study which was concerned to investigate the experiences of gay men living with HIV disease on anti-HIV clinical drug trials in Australia. Participation observation of a Phase I clinical trial and in-depth interviews with both trial participants on a range of clinical trials and trial nurses provided data which point to the centrality of the clinic setting in structuring the experiences of trial participants. The importance of the clinic site is particularly evident in respect of issues of information control and particularly for asymptomatic trial participants, confrontation with future ill selves. A further key issue which emerged relates to the epidemiological profile of the HIV epidemic in Australia in which gay men are disproportionately represented; the HIV trial site is a sexualized space, presence there is commonly assumed to mean that the individual is gay, given the cultural co-categorization of homosexuality and HIV. These findings have implications for accrual to anti-HIV clinical trials, for compliance rates and for health care intervention programmes, in particular those which are concerned to monitor and support those participating in AIDS clinical trials. The findings are also of broad relevance to the wider issue of quality of life of gay men with HIV disease taking experimental anti-HIV therapies.

Item Type: Article
Subjects: H Social Sciences
Divisions: Faculties > Social Sciences > School of Social Policy Sociology and Social Research
Depositing User: I.T. Ekpo
Date Deposited: 25 Oct 2009 08:43
Last Modified: 25 Oct 2009 08:43
Resource URI: https://kar.kent.ac.uk/id/eprint/19011 (The current URI for this page, for reference purposes)
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