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What causes problems in Alzheimer's disease: attributions by caregivers. A qualitative study

Paton, Joni, Johnston, Kate, Katona, Cornelius, Livingston, Gill (2004) What causes problems in Alzheimer's disease: attributions by caregivers. A qualitative study. International Journal of Geriatric Psychiatry, 19 (6). pp. 527-532. ISSN 0885-6230. (doi:10.1002/gps.1118) (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided) (KAR id:12229)

The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided.
Official URL
http://dx.doi.org/10.1002/gps.1118

Abstract

Objective To gain insight into caregivers' understanding of the causes of behaviours they find problematic in people with Alzheimer's disease in order to inform the development of educational strategies.

Methods A qualitative, semi-structured interview was used. Participants were 205 caregivers for a person with Alzheimer's disease, all of whom were aware of the diagnosis and who had been recruited as part of a larger longitudinal study. Participants were from inner-city and suburban London/semi-rural Essex. The main outcome measures were caregivers, understanding of: the cause of problematic behaviour; the ability of the person with dementia to control this behaviour; the prognosis of the illness.

Results Most caters attribute the cognitive, behavioural and psychological symptoms of dementia to causes other than dementia; many believe that the person with dementia has control over their behaviour and substantial numbers believe the person with dementia will return to normal.

Conclusions This study suggests that providing facts about the illness to caregivers is not enough, as caregivers may not understand that the symptoms they observe are related to the diagnosis. Education by clinicians should focus on the understanding of caregivers and in particular explore the caregivers' attributions of the symptoms which are present in the person for whom they care.

Item Type: Article
DOI/Identification number: 10.1002/gps.1118
Uncontrolled keywords: Alzheimer's disease; carers; attribution; dementia; behaviour; symptoms
Subjects: R Medicine > RC Internal medicine > RC321 Neuroscience. Biological psychiatry. Neuropsychiatry
Divisions: Divisions > Division for the Study of Law, Society and Social Justice > School of Social Policy, Sociology and Social Research
Depositing User: M.P. Stone
Date Deposited: 26 Sep 2008 15:18 UTC
Last Modified: 16 Nov 2021 09:50 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/12229 (The current URI for this page, for reference purposes)
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