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The impact of diabetes on formal and informal care

Gousia, Katerina, Nizalova, Olena, Malisauskaite, Gintare, Teo, Hansel (2026) The impact of diabetes on formal and informal care. Social Science & Medicine, 411 . Article Number 119955. ISSN 0277-9536. (doi:10.1016/j.socscimed.2026.119955) (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided) (KAR id:117290)

The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided.
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Official URL:
https://doi.org/10.1016/j.socscimed.2026.119955

Abstract

There is limited evidence on how chronic conditions affect the demand and costs for long-term care (LTC), restricting our ability to evaluate interventions. This paper estimates the causal effect of type 2 diabetes (T2D), a highly prevalent chronic condition among the elderly, on formal and informal LTC utilization. We used data from eight waves (2002-2017) of the English Longitudinal Study of Ageing (ELSA) (n = 18,166) and employed a Mendelian Randomization approach to address the endogeneity of diabetes status in LTC demand. Our results indicate that T2D increases the probability of using formal care by 6 percentage points and informal care by 27 percentage points. When adjusting for possible pleiotropy via obesity, the impact on informal care reduces to 25 percentage points. Exploration of mechanisms shows that diabetes increases the likelihood of limitations in activities of daily living (ADLs) and instrumental activities of daily living (IADLs). These results highlight the broader burden of T2D beyond healthcare costs and can be used in future decision analytic models to evaluate the cost-effectiveness of diabetes interventions.

Item Type: Article
DOI/Identification number: 10.1016/j.socscimed.2026.119955
Uncontrolled keywords: Diabetes; Long-term care; Mendelian randomization
Subjects: H Social Sciences
Institutional Unit: Schools > School of Social Sciences > Care and Outcomes Research Centre
Former Institutional Unit:
There are no former institutional units.
Funders: University of Kent (https://ror.org/00xkeyj56)
Depositing User: Katerina Gousia
Date Deposited: 27 Oct 2026 17:23 UTC
Last Modified: 28 Oct 2026 12:26 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/117290 (The current URI for this page, for reference purposes)

University of Kent Author Information

Gousia, Katerina.

Creator's ORCID: https://orcid.org/0000-0002-2494-786X
CReDIT Contributor Roles: Conceptualisation, Methodology, Writing - original draft, Funding acquisition, Project administration, Writing - review and editing, Data curation, Formal analysis

Nizalova, Olena.

Creator's ORCID: https://orcid.org/0000-0002-1704-2632
CReDIT Contributor Roles: Funding acquisition, Writing - review and editing, Methodology, Conceptualisation, Project administration, Data curation

Malisauskaite, Gintare.

Creator's ORCID: https://orcid.org/0000-0002-0797-5949
CReDIT Contributor Roles: Funding acquisition, Writing - review and editing, Methodology, Conceptualisation, Data curation

Teo, Hansel.

Creator's ORCID: https://orcid.org/0000-0001-9374-0494
CReDIT Contributor Roles: Writing - review and editing, Data curation, Methodology, Conceptualisation
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