A Qualitative Exploration of Paid Carers' Experience of Caring for Men With Intellectual and/or Developmental Disability and Harmful Sexual Behaviour

Background

Paid carers supporting men with Intellectual and Developmental Disability and Harmful Sexual Behaviour face complex challenges which can affect the carers well-being and quality of care for the person they support. This study explores carers' lived experiences of caring for this group of men.

Method

Six paid carers were interviewed regarding their experience of providing care. Semi-structured interviews were conducted online and analysed using Interpretative Phenomenological Analysis.

Results

Three superordinate themes were identified through the analysis: ‘The balance of drive and burden’, ‘External influence on care provided’ and ‘Co-producing care and support’. Carers found the role emotionally demanding and needed support from others to cope. The importance of person-centred care and carer responsiveness was also emphasised.

Conclusion

This study highlights the emotional demands and negative public perception faced by paid carers. Clinical implications include enhancing professional recognition, strengthening organisational support and promoting emotional processing.