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Assessing Appearance, Speech, and Hearing (dis)Satisfaction in Individuals with Cleft Lip and/or Palate: A Contribution to General Population Norms

Stock, Nicola M., Costa, Bruna, White, Paul, Eve, Lauren, Bates, Amanda Jane (2024) Assessing Appearance, Speech, and Hearing (dis)Satisfaction in Individuals with Cleft Lip and/or Palate: A Contribution to General Population Norms. The Cleft Palate Craniofacial Journal, . ISSN 1055-6656. E-ISSN 1545-1569. (doi:10.1177/10556656241241127) (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided) (KAR id:105491)

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Official URL:
https://doi.org/10.1177/10556656241241127

Abstract

Background: Individuals with cleft lip and/or palate (CL/P) may grow up with a visible facial difference, alongside speech and/or hearing challenges. Self-perceptions are stronger predictors of psychosocial adjustment than objective assessments, highlighting the importance of patient-reported outcome measures. Previously titled the Satisfaction with Appearance (SwA) questionnaire, the Cleft Hearing, Appearance and Speech Questionnaire (CHASQ) has been used in several countries to assess patient satisfaction, guide clinical decision-making, and conduct craniofacial research, but has lacked general population norms from which to draw comparisons. The aim of this study was to contribute to the development of norms by utilising existing data collected in the United Kingdom (UK) in 2004 using the original SwA.

Methods: SwA data collected from school pupils ( n = 761) aged 10–16 years were analysed across age and gender.

Results: Hair, Eyes and Ears received the highest ratings, while Teeth received the lowest ratings. Those who were younger, and those who were male, generally rated their appearance more favourably. Thresholds are proposed to identify young people in need of clinical monitoring (10%) and intervention (5%).

Discussion: This study supports the potential of the CHASQ as a clinically useful outcome measure and research tool with the ability to identify appearance concerns in relation to specific facial features, as well as overall appearance satisfaction in young people with and without CL/P. Further validation of its use in the CL/P population and other patient groups, as well as countries outside the UK would add additional weight to the CHASQ's utility.

Item Type: Article
DOI/Identification number: 10.1177/10556656241241127
Uncontrolled keywords: Otorhinolaryngology, Oral Surgery
Subjects: R Medicine
R Medicine > RA Public aspects of medicine
Divisions: Divisions > Division for the Study of Law, Society and Social Justice > School of Social Policy, Sociology and Social Research > Centre for Health Services Studies
SWORD Depositor: JISC Publications Router
Depositing User: JISC Publications Router
Date Deposited: 03 Apr 2024 14:33 UTC
Last Modified: 01 May 2024 09:24 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/105491 (The current URI for this page, for reference purposes)

University of Kent Author Information

Bates, Amanda Jane.

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