Support for family carers of children and young people with developmental disabilities and challenging behaviour

McGill, Peter and Papachristoforou, E. and Cooper, V. (2006) Support for family carers of children and young people with developmental disabilities and challenging behaviour. Child: Care, Health and Development, 32 (2). pp. 159-165. (The full text of this publication is not available from this repository)

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Abstract

Background This study gathered information about perceptions of family carers of children and young people with developmental disabilities and challenging behaviour of the help, support and treatment received from services and professionals. Methods 66 family carers completed postal questionnaires on the nature of, and their satisfaction with, services, professional help and advice received in respect of their family member’s challenging behaviour. Results Most carers were dissatisfied with support and services received. Almost half reported receiving no professional input or none that was helpful. Over two-thirds reported receiving respite care but, in a third of these, the child had been excluded because of challenging behaviour. Conclusions Families of children with challenging behaviour often do not receive services and supports that they find helpful. Treatments provided are not always evidence-based. The “rationing” of services creates a danger of inequality of access. We need a more proactive approach to identifying and meeting the need for family support.

Item Type: Article
Subjects: H Social Sciences > HV Social pathology. Social and public welfare > HV3008 Mental handicap and social care
Divisions: Faculties > Social Sciences > School of Social Policy Sociology and Social Research > Tizard
Depositing User: Peter McGill
Date Deposited: 29 Jun 2011 12:50
Last Modified: 30 May 2014 13:32
Resource URI: http://kar.kent.ac.uk/id/eprint/23033 (The current URI for this page, for reference purposes)
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