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Number of items: 55.

Article

Oliver, David J. (2019) Palliative care in motor neurone disease: where are we now? Palliative Care: Research and Treatment, 12 . ISSN 1178-2242. (doi:https://doi.org/10.1177/1178224218813914) (Full text available)

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Oliver, David J. (2018) Improving patient outcomes through palliative care integration in other specialised health services: what we have learned so far and how can we improve? Annals of Palliative Medicine, 7 (S3). S219-S230. ISSN 2224-5820. (doi:https://doi.org/10.21037/apm.2018.05.05) (Full text available)

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Köpke, S. and Giordano, A. and Veronese, S. and Christin Rahn, A. and Kleiter, I. and Basedow-Rajwich, B. and Fornari, A. and Battaglia, M. A. and Drulovic, J. and Kooij, L. and Koops, J. and Mens, J. and Meza Murillo, E. R. and Milanov, I. and Milo, R. and Patti, F. and Pekmezovic, T. and Sastre-Garriga, J. and Vosburgh, J. and Voltz, R. and Bay, J. and Oliver, David J. and Solari, A. (2018) Patient and caregiver involvement in the formulation of guideline questions: findings from the European Academy of Neurology guideline on palliative care of people with severe multiple sclerosis. European Journal of Neurology, . ISSN 1351-5101. E-ISSN 1468-1331. (doi:https://doi.org/10.1111/ene.13760) (Access to this publication is currently restricted. You may be able to access a copy if URLs are provided)

Hussain, Jamilla and Allgar, Victoria and Oliver, David J. (2018) Palliative care triggers in progressive neurodegenerative conditions: An evaluation using a multi-centre retrospective case record review and principal component analysis. Palliative Medicine, 32 (4). pp. 716-725. ISSN 0269-2163. E-ISSN 1477-030X. (doi:https://doi.org/10.1177/0269216318755884) (Full text available)

Aoun, S.M. and Breen, L.J. and Oliver, David J. and Henderson, R.D. and Edis, R. and O'Connor, M. and Howting, D. and Harris, R. and Birks, C. (2017) Family carers' experiences of receiving the news of a Motor Neurone Disease: a national survey. Journal of the Neurological Sciences, 372 . pp. 144-151. ISSN 0022-510X. (doi:https://doi.org/10.1016/j.jns.2016.11.043) (Access to this publication is currently restricted. You may be able to access a copy if URLs are provided)

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Oliver, David J. and Radunovic, Alessandar and Allen, Alexander and McDermott, Christopher (2017) The development of the UK National Institute of Health and Care Excellence evidence-based clinical guidelines on motor neurone disease. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 18 (5-6). pp. 313-323. ISSN 2167-8421. (doi:https://doi.org/10.1080/21678421.2017.1304558) (Full text available)

Forrester-Jones, Rachel and Beecham, Jennifer and Barnoux, Magali F.L. and Oliver, David J. and Couch, Elyse and Bates, Claire (2017) People with intellectual disabilities at the end of their lives: The case for specialist care? Journal of Applied Research in Intellectual Disabilities, 30 (6). pp. 1138-1150. ISSN 1360-2322. E-ISSN 1468-3148. (doi:https://doi.org/10.1111/jar.12412) (Access to this publication is currently restricted. You may be able to access a copy if URLs are provided)

Veronese, Simone and Gallo, G. and Valle, A. and Cugno, C. and Chio, A. and Calvo, A. and Cavalla, P. and Zibetti, M. and Rivoiro, C. and Oliver, David J. (2017) Specialist palliative care improves the quality of life in advanced neurodegenerative disorders: Ne-PAL a pilot randomized controlled study. BMJ Supportive and Palliative Care, 7 (2). ISSN 2045-435X. (doi:https://doi.org/10.1136/bmjspcare-2014-000788) (Full text available)

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Aoun, S.M. and Breen, L.J. and Edis, R. and Henderson, R.D. and Oliver, David J. and Harris, Rodney and Howting, Denise and O, Connor, M. and Birks, C. (2016) Breaking the news of a diagnosis of motor neurone disease: a national survey of neurologists' perspectives. Journal of Neurological the Sciences, 367 . pp. 368-374. ISSN 0022-510X. (doi:https://doi.org/10.1016/j.jns.2016.06.033) (Access to this publication is currently restricted. You may be able to access a copy if URLs are provided)

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Oliver, David J. and Veronese, Simone (2016) Symptomatic management of neurodegenerative disease in the elderly. Progress in Palliative Care, 25 (1). pp. 11-16. ISSN 0969-9260. E-ISSN 1743-291X. (doi:https://doi.org/10.1080/09699260.2016.1193968) (Access to this publication is currently restricted. You may be able to access a copy if URLs are provided)

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Vanopdenbosch, L.J. and Oliver, David J. and Kass, J.S. (2016) Palliative care in multiple sclerosis. Continuum : Lifelong Learning in Neurology, 22 (3). pp. 943-946. ISSN 1080-2371. E-ISSN 1538-6899. (doi:https://doi.org/10.1212/CON.0000000000000321) (Access to this publication is currently restricted. You may be able to access a copy if URLs are provided)

Faull, Christina and Oliver, David J. (2016) Withdrawal of ventilation at the request of a patient with motor neurone disease: guidance for professionals. BMJ Supportive and Palliative Care, 6 . pp. 144-146. ISSN 2045-435X. E-ISSN 2045-4368. (doi:https://doi.org/10.1136/bmjspcare-2016-001139) (Full text available)

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Oliver, David J. (2016) Palliative care for patients with motor neurone disease: current challenges. Degenerative Neurological and Neuromuscular Disease, 16 . pp. 65-72. (doi:https://doi.org/10.2147/DNND.S85103) (Full text available)

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Tuffrey-Wijne, Irene and Wicki, M. and Heslop, P. and McCaroon, M. and Todd, S. and Oliver, David J. and de Veer, A. and Ahlstrom, G. and Schaper, S. and Hynes, G. and O'Farrell, J. and Adler, J. and Riese, F. and Curfs, Leopold (2016) Developing research priorities for palliative care of people with intellectual disabilities in Europe: a consultation process using nominal group technique. BMC Palliative Care, . ISSN 1472-684X. (doi:https://doi.org/10.1186/s12904-016-0108-5) (Full text available)

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Oliver, David J. and Borasio, G.D. and Caraceni, A. and de Visser, M. and Grisold, W. and Lorenzl, S. and Veronese, Simone and Voltz, R. (2016) A consensus review on the development of palliative care for patients with chronic and progressive neurological disease. European Journal of Neurology, 23 (1). pp. 30-38. ISSN 1351-5101. (doi:https://doi.org/10.1111/ene.12889) (Access to this publication is currently restricted. You may be able to access a copy if URLs are provided)

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Aoun, Samar M. and Breen, Lauren J. and Howting, Denise and Edis, Robert and Oliver, David J. and Henderson, Robert and O'Connor, Margaret and Harris, Rodney and Birks, Carol (2016) Receiving the news of a diagnosis of motor neurone disease: what does it take to make it better? Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 17 (3-4). pp. 168-178. ISSN 2167-8421. E-ISSN 2167-9223. (doi:https://doi.org/10.3109/21678421.2015.1111907) (Full text available)

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Tuffrey-Wijne, Irene and McLaughlin, Dorry and Curfs, Leopold and Dusart, Anne and Hoenger, Catherine and McEnhill, Linda and Read, Sue and Ryan, Karen and Satgé, Daniel and Strasser, Benjamin and Westergard, Britt-Evy and Oliver, David J. (2015) Defining consensus norms for palliative care of people with intellectual disabilities in Europe, using Delphi methods. Palliative Medicine, 30 (5). pp. 446-455. ISSN 0269-2163. (doi:https://doi.org/10.1177/0269216315600993) (Full text available)

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Phelps, Kay and Regen, Emma and Oliver, David J. and McDermott, Chris and Faull, Christina (2015) Withdrawal of ventilation at the patient's request in MND: a retrospective exploration of the ethical and legal issues that have arisen for doctors in the UK. British Medical Journal, . ISSN 0959-8138. (doi:https://doi.org/10.1136/bmjspcare-2014-000826) (Full text available)

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Nixon, Imogen and Popkiewicz, Faustina and Banerjee, Sandip and Vincent-Smith, Lisa and Oliver, David J. (2015) Using a joint approach to non-invasive ventilation in motor neurone disease. European Journal of Palliative Care, 22 (4). pp. 182-184. ISSN 1352-2779. (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

Watermeyer, Tamlyn J. and Brown, R.G. and Sidle, K.C.L and Oliver, David J. and Allen, C. and Karlsson, Joanna and Ellis, C.M and Shaw, C.E. and Al-Chalabi, Ammar and Goldstein, Laura H. (2015) Impact of disease, cognitive and behavioural factors on caregiver outcome in amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 16 (5 -6). pp. 316-325. ISSN 2167-8421. E-ISSN 2167-9223. (doi:https://doi.org/10.3109/21678421.2015.1051990) (Full text available)

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Veronese, Simone and Gallo, G. and Valle, A. and Cugno, C. and Chio, A. and Calvo, A. and Rivoiro, C. and Oliver, David J. (2015) The palliative care needs of people severely affected by neurodegenerative disorders:a qualitative study. Progress in Palliative Care, 23 (6). pp. 331-342. ISSN 0969-9260. E-ISSN 1743-291X. (doi:https://doi.org/10.1179/1743291X15Y.0000000007) (Full text available)

Watermeyer, Tamlyn J. and Brown, Richard G. and Sidle, Katie C.L. and Oliver, David J. and Allen, Christopher and Karlsson, Joanna and Ellis, Catherine M. and Shaw, Christopher E. and Al-Chalabi, Ammar and Goldstein, Laura H. (2015) Executive dysfunction predicts social cognition impairment in amyotropic lateral sclerosis. Journal of Neurology, 262 (7). pp. 1681-1690. ISSN 0340-5354. (doi:https://doi.org/10.1007/s00415-015-7761-0) (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

Vanopdenbosch, L. and Oliver, David J. (2015) An initial survey on neurological palliative care. European Journal of Neurology, 22 (1). p. 282. ISSN 1351-5101. (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

Oliver, David J. (2014) Palliative Care for People with Progressive Neurological Disease: What is the role? Journal of Palliative Care, 30 (4). pp. 298-301. ISSN 0825-8597. (Full text available)

Faull, Christina and Rowe Haynes, Cassy and Oliver, David J. (2014) Issues for palliative medicine doctors surrounding the withdrawal of non-invasive ventilation at the request of a patient with motor neurone disease: a scoping study. BMJ Supportive & Palliative Care, 4 (1). pp. 43-49. ISSN 2045-435X. E-ISSN 2045-4368. (doi:https://doi.org/10.1136/bmjspcare-2013-000470) (Full text available)

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Cawley, Declan and Billings, Jenny R. and Oliver, David J. and Kendall, M. and Pinnock, Hilary (2014) Potential triggers for the holistic assessment of people with severe chronic obstructive pulmonary disease: analysis of multiperspective, serial qualitative interviews. BMJ Supportive & Palliative Care, 4 (2). pp. 152-160. ISSN 2045-435X. (doi:https://doi.org/10.1136/bmjspcare-2013-000629) (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

Oliver, David J. and Turner, Martin (2010) Some difficult decisions in ALS/MND. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 11 (4). pp. 339-343. ISSN 2167-8421. (doi:https://doi.org/10.3109/17482968.2010.487532) (Access to this publication is currently restricted. You may be able to access a copy if URLs are provided)

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Duplock, L. and Forrester-Jones, R.V.E. and Oliver, David J. (2009) Improving care for patients with intellectual disabilities. European Journal of Palliative Care, 16 (2). pp. 66-68. ISSN 1352-2779. (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

Oliver, David J. and Bell, Jenny and Gallagher, Donal and Hobbs, Laura and Newton, Jenny and Rackham, Claire and Swannick, Jackie and Thompson, Sheila (2007) Development of a pathway to facilitate gastrostomy insertion for patients with MND. International Journal of Palliative Nursing, 13 (9). pp. 420-429. ISSN 1357-6321. (Access to this publication is currently restricted. You may be able to access a copy if URLs are provided)

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Neudert, Christian and Oliver, David J. and Wasner, Maria and Borasio, Gian Domenico (2001) The course of the terminal phase in patients with amyotrophic lateral sclerosis. Journal of Neurology, 248 . pp. 612-616. ISSN 0340-5354. (doi:https://doi.org/10.1007/s004150170140) (Access to this publication is currently restricted. You may be able to access a copy if URLs are provided)

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Oliver, David J. and Webb, Sandi (2000) The involvement of specialist palliative care in the care of people with motor neurone disease. Palliative Medicine, 14 (5). pp. 427-428. ISSN 0269-2163. (doi:https://doi.org/10.1191/026921600701536264) (Full text available)

Oliver, David J. (1998) Opioid medication in the palliative care of motor neurone disease. Palliative Medicine, 12 (2). pp. 113-115. ISSN 0269-2163. (Full text available)

Oliver, David J. (1996) The quality of care and symptom control - the effects on the terminal phase of ALS/MND. Journal of Neurological Sciences, 139 (Suppl.). pp. 134-136. ISSN 0022-510X. (doi:https://doi.org/10.1016/0022-510X(96)00087-1) (Access to this publication is currently restricted. You may be able to access a copy if URLs are provided)

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Book section

Oliver, David J. (2015) Palliative care approaches in motor neurone disease. In: Ingleton, C. and Larkin, P.J., eds. Palliative Care Nursing at a Glance. Wiley, Chichester. (doi:https://doi.org/10.1046/j.1474-7766.2002.00402.x) (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

Conference or workshop item

Forrester-Jones, Rachel and Oliver, David J. (2016) End of life: exploring the attitudes of health and social care professionals to the palliative care needs of people with intellectual disability in the UK, Portugal and Nigeria. In: Journal of Intellectual Disability Research. Wiley-Blackwell p. 667. (Unpublished) (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

Oliver, David J. and Forrester-Jones, Rachel (2016) Exploring the attitudes of health and social care professionals to the care of people with intellectual disability in the UK, Portugal and Nigeria. In: 9th World Congress for European Association of Palliative Care, 9-11 June 2016, Dublin. (Unpublished) (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

Forrester-Jones, Rachel and Oliver, David J. and Krotofil, J. (2015) Chronic Fatigue Syndrome/Myalgic Encephalomyelitis: Care at Burrswood Hospital. In: CFS/Me Research Collaborative Conference, 13-14 October 2015, Newcastle. (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

Forrester-Jones, Rachel and Oliver, David J. and Krotofil, J. (2015) "I think the thing that stands out for me is that they understand": a case study of specialist provision for Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis. In: Faith in Healing Conference, 17 September 2015, University of Birmingham. (Unpublished) (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

Forrester-Jones, Rachel and Oliver, David J. and Barnoux, Magali F.L. and Beecham, J. (2015) Palliative care for People with IDD growing older. In: 14th World Congress of the European Association for Palliative Care, 8-10 May 2015, Copenhagen, Denmark. (Unpublished) (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

Forrester-Jones, Rachel and Oliver, David J. and Krotofil, J. (2015) Third Sector Responses to Health Care Challenges of ‘difficult to manage diagnoses’: a case study of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis. In: Social Policy Association International Conference, 6-8 July 2015, Belfast, Northern Ireland. (Full text available)

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Forrester-Jones, Rachel and Oliver, David J. and Barnoux, Magali F.L. and Couch, M. (2014) People with IDD growing older: the case for specialist care? In: Seattle Club Conference, 11-12 December 2014, Canterbury, Kent. (Unpublished) (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

Forrester-Jones, Rachel and Oliver, David J. and Barnoux, Magali F.L. (2014) People with IDD growing older: the case for specialist palliative care? In: Journal of Applied Research in Intellectual Disabilities. Wiley-Blackwell p. 395. (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

Forrester-Jones, Rachel and Oliver, David J. and Barnoux, Magali F.L. (2013) People with IDD growing older: the case for specialist care: indicative findings. In: Seattle Club Conference, 9-10 December 2013, Cardiff, Wales. (Unpublished) (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

Forrester-Jones, Rachel and Oliver, David J. (2010) Equal consideration? Comparing the experience of funerals between people with and without ID. Third International Conference of IASSID Europe. In: Journal of Applied Research in Intellectual Disabilities. Wiley-Blackwell p. 415. (doi:https://doi.org/10.1111/j.1468-3148.2010.00580.x) (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

Forrester-Jones, Rachel and Oliver, David J. (2010) How can we improve end of life care for people with ID? In: Journal of Applied Research in Intellectual Disabilities. Wiley-Blackwell p. 415. (doi:https://doi.org/10.1111/j.1468-3148.2010.00580.x) (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

Forrester-Jones, Rachel and Oliver, David J. and Duplock, L. (2008) My training did not prepare me for this! Specialist palliative carers knowledge of intellectual disability. 13th World Congress IASSID. In: Journal of Intellectual Disability Research. Wiley-Blackwell p. 652. (doi:https://doi.org/10.1111/j.1365-2788.2008.01087.x) (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

Forrester-Jones, Rachel and Oliver, David J. and Duplock, L. (2008) Why should they go to the hospice? Carer attitudes to palliative care services. In: Journal of Intellectual Disability Research. Wiley-Blackwell p. 652. (doi:https://doi.org/10.1111/j.1365-2788.2008.01083.x) (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

Oliver, David J. and Forrester-Jones, Rachel and Duplock, L. (2007) Palliative care and intellectual disability - exploring the knowledge of specialist palliative care providers in Kent. In: Programme and Abstracts. p. 84. (Unpublished) (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

Forrester-Jones, Rachel and Oliver, David J. (2007) Palliative care and intellectual disability – exploring the knowledge of specialist palliative care providers in Kent. In: Poster Programme and Abstracts. p. 84. (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

Forrester-Jones, Rachel and Oliver, David J. (2006) After they are gone: Identity of people with intellectual disabilities once they have died. In: Journal of Applied Research in Intellectual Disabilities. Wiley-Blackwell p. 276. (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

Forrester-Jones, Rachel and Oliver, David J. (2006) After they are gone: identity of people with intellectual disabilities once they have died. European Conference for the International Association for the Scientific Study of Intellectual Disabilities. In: Journal of Applied Research in Intellectual Disabilities. Wiley-Blackwell p. 276. (doi:https://doi.org/10.1111/j.1468-3148.2006.00324_3.x) (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

Thesis

Veronese, Simone (2010) What are the palliative care needs of people severely affected by neurodegenerative conditions, and how can a Specialist Palliative Care Service best meet these needs. Doctor of Philosophy (PhD) thesis, University of Kent. (Full text available)

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Research report (external)

Forrester-Jones, Rachel and Oliver, David J. and Barnoux, Magali F.L. and Beecham, J. (2015) Palliative care for people with IDD at Fynvola. Tizard Centre, University of Kent (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

Forrester-Jones, Rachel and Oliver, David J. (2014) Exploratory study of the attitudes towards palliative care, and the attitudes to people with learning disability within palliative care: Summary report to Astor Foundation. Tizard Centre, University of Kent (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided)

Review

Oliver, David J. (2016) Peaceful, pain free and dignified: palliative and end of life care. Review of: Peaceful, pain free and dignified: palliative and end of life care for people on the autism spectrum. A guide for social care practitioners by Ferguson, J. and Laurie, V.. Tizard Learning Disability Review, . 0-0. ISSN 1359-5474. (Full text available)

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