Developing a code of ethics for Patient and Public Involvement in research design

Pandya, Raksha and Bates, Amanda (2010) Developing a code of ethics for Patient and Public Involvement in research design. In: INVOLVE conference, 16/17 November 2010, East Midlands Conference Centre, Nottingham. (Unpublished) (The full text of this publication is not available from this repository)

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http://www.invo.org.uk/posttypeconference/developi...

Abstract

Five (out of ten) Research Design Services (RDSs) offer small grants to researchers who would like service users/carers/the public to be involved in developing research funding applications, and this workshop will highlight the types of involvement funded by RDSs. As an RDS, we often find that researchers are unsure whether there are ethical implications in involvement at the design stage. The National Research Ethics Committee (NRES) and INVOLVE issued a joint statement (2009) clarifying this position, however greater clarity on this issue is required. We suggest a code of ethics is needed to illuminate the ethical grey areas in user involvement in research design.

Item Type: Conference or workshop item (Paper)
Subjects: R Medicine > R Medicine (General) > R723 Medical ethics
R Medicine > RA Public aspects of medicine
Divisions: Faculties > Social Sciences > School of Social Policy Sociology and Social Research > Centre for Health Services Studies
Depositing User: Tony Rees
Date Deposited: 06 Jun 2012 09:53
Last Modified: 08 May 2014 13:49
Resource URI: http://kar.kent.ac.uk/id/eprint/29608 (The current URI for this page, for reference purposes)
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