Preferences for end of life: views of hospice patients, family carers, and community nurse specialists

Holdsworth, Laura M. and King, Annette (2011) Preferences for end of life: views of hospice patients, family carers, and community nurse specialists. International Journal of Palliative Nursing, 17 (5). pp. 251-255. ISSN 1357-6321. (The full text of this publication is not available from this repository)

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Abstract

An exploratory qualitative study was undertaken with the aim of identifying issues around discussing and recording preferences on place of death from the perspective of hospice patients, carers, and hospice community nurses. A purposive sample was selected from three hospices in the south east of England of six community nurse specialists (CNSs), five patients. five carers. and five bereaved carers. The patients and carers said it was important to them to discuss their preferences. but they acknowledged that discussing dying was difficult. The CNSs stated that there were several barriers that inhibited end-of-life discussions and that discussing preferences was not always a primary goal of care planning. It was felt among the service users, particularly the bereaved carers, that having more knowledge about what to expect of the dying process, knowing !:heir relative's wishes, and understanding [he role of hospice and palliative care could improve the experience of events leading up death.

Item Type: Article
Uncontrolled keywords: Hospice, Preferences, Place of death, End of life, Palliative care, Communication
Subjects: H Social Sciences > HQ The family. Marriage. Woman
R Medicine > RT Nursing
Divisions: Faculties > Social Sciences > School of Social Policy Sociology and Social Research > Centre for Health Services Studies
Depositing User: Tony Rees
Date Deposited: 07 Oct 2011 14:54
Last Modified: 26 Jun 2014 13:47
Resource URI: http://kar.kent.ac.uk/id/eprint/28204 (The current URI for this page, for reference purposes)
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