Support for family carers of children and young people with developmental disabilities and challenging behaviour: What stops it being helpful?

Wodehouse, G. and McGill, Peter (2009) Support for family carers of children and young people with developmental disabilities and challenging behaviour: What stops it being helpful? Journal of Intellectual Disability Research, 53 (Part 7). pp. 644-653. ISSN 0964-2633 . (The full text of this publication is not available from this repository)

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Official URL
http://dx.doi.org/10.1111/j.1365-2788.2009.01163.x

Abstract

Background Many family carers find the support they receive in respect of their child’s challenging behaviour unhelpful. This study sought to identify carer perceptions of the ways in which support is unhelpful and how it could be more helpful. Methods Thirteen mothers, caring for a child with intellectual disability and challenging behaviour, were interviewed. Parental perceptions and concerns regarding support received were investigated. Transcribed interviews were analysed using interpretive phenomenological analysis. Results Parents reported problems with generic disability services including accessing good services, obtaining relevant information, working relationships with professionals, and issues with respite provision. Concerns were also expressed about challenging behaviour specific provision including ineffective strategies being suggested, an apparent lack of expertise, insufficient input and their child’s exclusion from services. Conclusions More preventative approaches, more widespread adoption of effective behaviour management and improved partnership between professionals and families appear needed. Increasing family support may be ineffective if not accompanied by greater insight into the factors related to effectiveness and recognition of the role of informal support.

Item Type: Article
Uncontrolled keywords: intellectual disability; family carers; challenging behaviour
Subjects: H Social Sciences > HV Social pathology. Social and public welfare > HV3008 Mental handicap and social care
B Philosophy. Psychology. Religion > BF Psychology
Divisions: Faculties > Social Sciences > School of Social Policy Sociology and Social Research > Tizard
Depositing User: Peter McGill
Date Deposited: 23 Nov 2009 13:46
Last Modified: 30 May 2014 13:30
Resource URI: http://kar.kent.ac.uk/id/eprint/20883 (The current URI for this page, for reference purposes)
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