Circumstances of death in sudden death in epilepsy: interviews of bereaved relatives

Nashef, L. and Garner, S. and Saner, Jwas and Fish, D.R. and Shorvon, S.D. (1998) Circumstances of death in sudden death in epilepsy: interviews of bereaved relatives. Journal of Neurology, Neurosurgery and Psychiatry, 64 (3). pp. 349-352. ISSN 0022-3050. (The full text of this publication is not available from this repository)

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Official URL
http://dx.doi.org/10.1136/jnnp.64.3.349

Abstract

Objectives-To study the circumstances of death in sudden death in epilepsy. Methods-Self referred bereaved relatives of patients with epilepsy who had died suddenly were interviewed with information obtained substantiated through Other sources-namely, coroners' officers' reports, postmortem reports, previous medical records, and EEG reports. Results-Of 34 cases, 26 were classified as sudden unexpected deaths in epilepsy (SUDEP). Twenty four of 26 cases of SUDEP were unwitnessed. Evidence indicative or suggestive of a seizure was found in most. In 11 of 26 the position of the head was such that breathing could have been compromised. Cases included both localisation related and idiopathic primary generalised epilepsy. Only three were in remission at the time of death. Most relatives expressed the view that they would have preferred to have known that epilepsy could be fatal. Conclusions-Although the deaths in question were largely unwitnessed, the available evidence suggested that most cases of SUDEP represented ictal or postictal seizure deaths, occurring in people with a history of generalised tonic clonic seizures, and in both primacy generalised and localisation related epilepsy. These interviews highlight the needs of bereaved relatives and their sense of isolation in the face of an entirely unexpected and apparently unexplained loss.

Item Type: Article
Uncontrolled keywords: sudden death in epilepsy
Subjects: R Medicine
Divisions: Faculties > Science Technology and Medical Studies > Kent Institute of Medicine and Health Sciences (KIMHS)
Depositing User: M.A. Ziai
Date Deposited: 29 Jun 2011 08:15
Last Modified: 29 Apr 2014 13:38
Resource URI: http://kar.kent.ac.uk/id/eprint/17468 (The current URI for this page, for reference purposes)
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