International ethical safeguards: genetics and people with learning disabilities

Diesfeld, K. (1999) International ethical safeguards: genetics and people with learning disabilities. Disability & Society, 14 (1). pp. 21-36. ISSN 0968-7599. (The full text of this publication is not available from this repository)

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Abstract

This paper discusses the ethical issues and international standards relating to genetic research on people with learning disabilities. Research protocols must acknowledge the people who are subjects of such research and must reflect emerging disability philosophies. This research provides a brief historical context and considers five issues of fundamental importance to people with learning disabilities through a discussion of participation in the research design, independent advocacy, justice, non-discrimination and autonomy. These concerns have been investigated in England and abroad, and it is therefore valuable to undertake a review of the legal and ethical context of genetic research for vulnerable people who may be deemed unable to provide consent.

Item Type: Article
Subjects: K Law
Divisions: Faculties > Social Sciences > Kent Law School
Depositing User: M. Nasiriavanaki
Date Deposited: 17 Jun 2009 02:26
Last Modified: 17 Jun 2009 02:26
Resource URI: http://kar.kent.ac.uk/id/eprint/17288 (The current URI for this page, for reference purposes)
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