Skip to main content
Kent Academic Repository

International ethical safeguards: genetics and people with learning disabilities

Diesfeld, Kate (1999) International ethical safeguards: genetics and people with learning disabilities. Disability & Society, 14 (1). pp. 21-36. ISSN 0968-7599. (doi:10.1080/09687599926352) (The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided) (KAR id:17288)

The full text of this publication is not currently available from this repository. You may be able to access a copy if URLs are provided.
Official URL:
https://doi.org/10.1080/09687599926352

Abstract

This paper discusses the ethical issues and international standards relating to genetic research on people with learning disabilities. Research protocols must acknowledge the people who are subjects of such research and must reflect emerging disability philosophies. This research provides a brief historical context and considers five issues of fundamental importance to people with learning disabilities through a discussion of participation in the research design, independent advocacy, justice, non-discrimination and autonomy. These concerns have been investigated in England and abroad, and it is therefore valuable to undertake a review of the legal and ethical context of genetic research for vulnerable people who may be deemed unable to provide consent.

Item Type: Article
DOI/Identification number: 10.1080/09687599926352
Subjects: K Law
Divisions: Divisions > Division for the Study of Law, Society and Social Justice > Kent Law School
Depositing User: M. Nasiriavanaki
Date Deposited: 17 Jun 2009 02:26 UTC
Last Modified: 09 Mar 2023 11:31 UTC
Resource URI: https://kar.kent.ac.uk/id/eprint/17288 (The current URI for this page, for reference purposes)

University of Kent Author Information

  • Depositors only (login required):

Total unique views for this document in KAR since July 2020. For more details click on the image.